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Development of the integrated New Jersey Safety and Health Outcomes (NJ-SHO) data warehouse: catalysing advancements in injury prevention research
  1. Allison E Curry1,2,
  2. Melissa R Pfeiffer1,
  3. Kristina B Metzger1,
  4. Meghan E Carey1,3,
  5. Lawrence J Cook4
  1. 1Center for Injury Research and Prevention, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA
  2. 2Division of Emergency Medicine, University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, USA
  3. 3AJ Drexel Autism Institute, Drexel University, Philadelphia, Pennsylvania, USA
  4. 4Department of Pediatrics, Division of Critical Care, University of Utah School of Medicine, Salt Lake City, Utah, USA
  1. Correspondence to Dr Allison E Curry, Center for Injury Research and Prevention, Children's Hospital of Philadelphia, Philadelphia, PA 19146, USA; currya{at}chop.edu

Abstract

Objective Our objective was to describe the development of the New Jersey Safety and Health Outcomes (NJ-SHO) data warehouse—a unique and comprehensive data source that integrates state-wide administrative databases in NJ to enable the field of injury prevention to address critical, high-priority research questions.

Methods We undertook an iterative process to link data from six state-wide administrative databases from NJ for the period of 2004 through 2018: (1) driver licensing histories, (2) traffic-related citations and suspensions, (3) police-reported crashes, (4) birth certificates, (5) death certificates and (6) hospital discharges (emergency department, inpatient and outpatient). We also linked to electronic health records of all NJ patients of the Children’s Hospital of Philadelphia network, census tract-level indicators (using geocoded residential addresses) and state-wide Medicaid/Medicare data. We used several metrics to evaluate the quality of the linkage process.

Results After the linkage process was complete, the NJ-SHO data warehouse included linked records for 22.3 million distinct individuals. Our evaluation of this linkage suggests that the linkage was of high quality: (1) the median match probability—or likelihood of a match being true—among all accepted pairs was 0.9999 (IQR: 0.9999–1.0000); and (2) the false match rate—or proportion of accepted pairs that were false matches—was 0.0063.

Conclusions The resulting NJ-SHO warehouse is one of the most comprehensive and rich longitudinal sources of injury data to date. The warehouse has already been used to support numerous studies and is primed to support a host of rigorous studies in the field of injury prevention.

  • motor vehicle occupant
  • epidemiology
  • risk factor research

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Footnotes

  • Contributors AEC secured funding for the study, planned the study, interpreted results and led the development of the manuscript. MRP designed the study, conducted the data linkage and drafted the manuscript. KBM planned the study, contributed to interpretation of results and critically revised the manuscript. MEC contributed to the planning of the study, contributed to interpretation of results and critically revised the manuscript. LJC designed the study, conducted the data linkage and critically revised the manuscript. All authors approved the final version of the manuscript.

  • Funding This work was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development at the National Institutes of Health Awards R21HD092850 (PI: AEC) and R21HD098276 (PI: AEC).

  • Disclaimer The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. The sponsor had no role in the design and conduct of the study; collection, management, analysis and interpretation of the data; preparation, review or approval of the manuscript; or decision to submit the manuscript for publication.

  • Competing interests None declared.

  • Patient consent for publication Not required.

  • Ethics approval Children's Hospital of Philadelphia (IRB 11-008136).

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data availability statement Data are available upon request.

  • Supplemental material This content has been supplied by the author(s). It has not been vetted by BMJ Publishing Group Limited (BMJ) and may not have been peer-reviewed. Any opinions or recommendations discussed are solely those of the author(s) and are not endorsed by BMJ. BMJ disclaims all liability and responsibility arising from any reliance placed on the content. Where the content includes any translated material, BMJ does not warrant the accuracy and reliability of the translations (including but not limited to local regulations, clinical guidelines, terminology, drug names and drug dosages), and is not responsible for any error and/or omissions arising from translation and adaptation or otherwise.

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