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Scoping the Field: Identifying Key Research Priorities in HIV and Rehabilitation

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Abstract

The purpose of this project was to identify key research priorities related to HIV and rehabilitation. We conducted a scoping study which included a literature review of published and grey literature, followed by focus group and interview consultations with 28 participants including people living with HIV, researchers, educators, clinicians, and policy makers with expertise in HIV and rehabilitation. Qualitative content analysis was used to identify emergent themes related to research priorities in HIV and rehabilitation. The resulting Framework of HIV and Rehabilitation Research provided an outline for approaching research in the field. The framework included three overlapping research priorities: (a) living with HIV across the lifespan, (b) disability, and (c) rehabilitation that should be viewed through environmental and/or personal contextual lenses, using different methodological approaches. Six key research priorities from this framework were identified through additional consultation with new and returning participants including: (1) disability and episodic disability, (2) concurrent health conditions aging with HIV, (3) HIV and the brain, (4) labour force and income support, (5) access to and effectiveness of rehabilitation, and (6) development and evaluation of outcome measurement tools. These priorities inform a future plan for HIV and rehabilitation research that will increase our knowledge to enhance practice, programming and policy for people living with HIV.

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Acknowledgments

We gratefully acknowledge Elizabeth Uleryk, Director of the Hospital for Sick Children Library for her assistance with the search strategy. Funding for this research was provided by the Public Health Agency of Canada and the Canadian Institutes of Health Research. Kelly O’Brien is supported by a Fellowship from the Canadian Institutes of Health Research, HIV/AIDS Research Program.

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Authors and Affiliations

  1. Canadian Working Group on HIV and Rehabilitation and Department of Physical Therapy, University of Toronto, 500 University Avenue, Room 160, Toronto, ON, M5G 1V7, Canada

    Kelly O’Brien

  2. School of Rehabilitation Science, McMaster University, IAHS, Room 403, 1400 Main Street, West, Hamilton, ON, L8S 1C7, Canada

    Kelly O’Brien & Patricia Solomon

  3. Canadian Working Group on HIV and Rehabilitation, 1240 Bay Street, Suite 600, Toronto, ON, M5R 2A7, Canada

    Annette Wilkins & Elisse Zack

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  1. Kelly O’Brien
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  2. Annette Wilkins
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  3. Elisse Zack
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  4. Patricia Solomon
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Correspondence to Kelly O’Brien.

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O’Brien, K., Wilkins, A., Zack, E. et al. Scoping the Field: Identifying Key Research Priorities in HIV and Rehabilitation. AIDS Behav 14, 448–458 (2010). https://doi.org/10.1007/s10461-009-9528-z

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